Sunday, April 3, 2011

News From the Home Front

I feel good.

No, I mean I feel damn good compared to how I feel on most Sundays and it's because I'm taking fewer medications now. Last week I had my regular three month appointment for the MS study I'm in. I told them I wanted to withdraw from the study mostly due to being tired of how the weekly Avonex I take makes me feel. Ever since I enrolled in the study back in December of 2006, my Sundays have been mostly ruined. The drug makes me very tired, gives me body aches from head to toe, and just generally makes me feel like garbage.

That's a lot of time spent feeling that way for anyone; but when you also are a single dad, work full-time, manage another disease, and are trying to finish school, it can be overwhelming. So, I finally decided I was through with it. I'm not sure what's next in managing my MS. I have to schedule an appointment with my regular neurology provider to explore my options. Cost will be the biggest hurdle. Check out this chart of MS drugs and how much each costs.



Now, I have good insurance, but the last time I looked it was only covering approximately half of the two drugs I checked on. There's no way I can cover the remainder. That means I might not be taking anything for awhile. On one hand that's rather scary. On the other, my thinking is "come what may." Even with medication there is no guarantee of what will happen with the disease in the future. None of these drugs are cures; they only work to slow progression of the disease. None offers a promise or any sort of guarantee of an MS-free future. They only offer hope of prolonging it. And, you know what? I don't need drugs for that. If I can find some sort of cost-effective solution now or sometime down the road, I'm sure I'll start taking something again but until then I'm not going to fret it.

In other news, I'll be starting school again tomorrow. It's long overdue. I only need 30 more credits to finally get my degree and I intend to do it by the end of the year. That's a lot of work for anyone let alone someone with all of the responsibilities I juggle, but somehow I'll make it happen. The next chapter of my life is past due and it's time I moved on. This will, of course, keep me quite busy. I'm not sure how often I'll be posting around here. I'll try to pop off something from time to time, but no promises. You can still catch my snark on Twitter or Facebook if you know me there. Live long and prosper.

1 comment:

Little Miss Gothic Muffet said...

Captain, I don't think she can take it any longer..... But seriously - My god - the medicine is insane! I hope what you are doing will work for you. Coolz on the school. So now your a little school boy eh? Awesome! I hope to do that one day. Right now the job I want is teaching and went to a private school and they said I could work their for a wopping 8 bucks an hour. What the... I have done well the last few years but now I just want a relaxing atmosphere where I am helping people.

What are you getting your degree in. What are the courses your taking?

Will getting you off the MS screw with the Diabetes? I don't want to hear about you going back into the hospital. That was scary.